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My Story

After tearing my right shoulder rotator cuff, the Doctor took an MRI and X-Ray. I was shocked to find out in mid-Nov '09 that I had a tumor in the upper right lung lobe. After a flurry of tests, biopsies, etc, I've been diagnosed with non-small cell lung cancer, which is also in the lung lymph nodes. On November 30th I start chemotherapy and radiation. Then a 3 week break, followed by surgery to remove the lung lobe. I have no symptoms whatsoever, so this is really hard to assimilate with all the information that has been thrown at me. I'm scared spitless and am having such a hard time staying mentally positive.

Friday, December 21, 2012

I wish you joy & laughter for Christmas

I am so very glad to be able to tell you that I'm better! Not great, but certainly better. It has been a very l-o-n-g November & December. I'm only really beginning to realize just how sick I really was.

A quick update, if you didn't know. I went into the hospital the day before Thanksgiving and stayed for 6 days. Thought I had the flu. After a brain MRI, it turns out, I didn't. The lung cancer metastasized to my brain – two teensy-tiny tumors @ 3mm & 4 mm, plus one bigger @ 2 cm, which is at the base of my cerebellum - were causing all kinds of havoc.

Immediately began whole brain radiation treatrments – 10 of them. Whoa! For the first week, I had ULTRA-sensitivity to light, sounds, smells and yucky nausea. Our house was like a bat cave – all the shades were pulled and I walked around with a pair of wrap-around “Stevie Wonder” sunglasses with earplugs in – quite the sight! Fortunately, those side effecs have pretty much faded. Still have a low-grade headache. Ah, it could be worse. In fact, it WAS worse.

Last Wednesday, Dec 12th, I had a laser treatment on the big tumor. It lasted for one hour. I had to wear a specially made mask – very, very tight to my face – and also wear a housepiece during the procedure. My head was bolted down to the table with the mask & mouthpiece in place – scarey. When the hour was up, the technicians helped me up from the table and said, “Oh, those marks on your face will fade over the next hour.” Me: “What marks?” Her: “Here's a mirror, take a look.” Well, once I got close enough to the mirror to see, I burst out laughing! I had hundreds of tiny squares indented on my forehead, my cheeks, my nose, my neck, my earlobes, my eyelids. I looked like a Belgian waffle!!!! Just needed a big pat of butter on my check to finish off the look! HA!!!!

Oh, and I have to tell you about this. They told me that I'd lose my hair after the radiation treatments stopped. I assumed it would fall out gradually. WRONG! Last Thursday, I went into the shower with hair and came out looking like a Capuchian monk! Gob & gobs & gobs of hair fell out – just from the pressure of the water hitting my head. It was like someone threw a switch – bam – no hair!! I am as bald as a cue ball! Very dramatic!! Gordy and I look like almost a matched set (he has more hair!). When I turned 59, I was bald and now at 62, I'm bald again. I don't think God wants me to have hair! Good thing it doesn't really matter to me – that's what hats are for, right?!

I will have a chest CT done the last week in January and see my Oncologist on the 29th, when I will go back on chemo-therapy (a once a day pill). Not exactly looking forward to it, but if it helps me stay around for awhile longer, I'm good with that, as long as my quality of life doesn't suffer.

Gordy & I are going to have a nice, quiet Christmas here at home. Both of my sisters, Micki & Nancee, are coming from the 27th through Jan 9th and will overlap their stays. This will give Gordy a chance to take a couple of ice-fishing trips way up in Northern Minnesota – to be able to get away without worrying about me. I intend to laugh & laugh & laugh my butt off the entire time my knucklehead sisters are here!

I will, of course, let you know what's happening. Merry Christmas from me & Gordy. With lots of love - Correne



Sunday, December 9, 2012

This is the first time I've been on the computer since the end of October. Inundated with email messages – yikes!. But I need to update all of you.

When I left off last, I was to have foot surgery on Oct 29th. Am so glad to report it went exceptionally well – my “Franken-foot” healed well and I'm back in regular shoes – awesome podiatrist/surgeon! That was certainly (and thankfully!) the least of my worries.

The problem began about a week or so after the foot surgery. I began to feel lethargic, achy, low-grade headache, nausea/vomiting, chills – flu-like symptoms. I'd never had the flu (believe it or not!). I kept getting worse a little bit each day that went by. After a week and a half, something intuitively told me this might not be the flu, but, hey!, I'm not the Dr.. Gordy took me to the clinic – they ran urine & blood tests; said go home & rest, that I had a particularly bad viral flu. Hmm-Hmm. Another week goes by, and in the interim, I'm feeling so much worse, plus, my sense of balance is all screwy – every time I stand up, I felt like I was going to tip over. I start walking around the house with a crutch, to make sure I don't topple over. Also, within a matter of days, the headache worsened, and I began to feel this pressure at the base of my skull. Very strange feeling. And this flu - no improvement. What the hell?!

The afternoon before Thanksgiving, I was feeling absolutely & totally punk, thinking to myself, “Tomorrow has to be better, it just has to be.” Gordy was at work. My friend Karen called. She was shocked at how awful I sounded. I'd had enough and asked her to take me to the ER. My sweet friend arrived in 15 minutes. An angel.

Was admitted to the hospital where I stayed for 5 days. I think the one thing that was “missed” throughout this was the fact that I had no fever, and that's the thing that kept nipping at the back of my mind. No fever? What the hell?!

It was no flu. A brain scan showed the lung cancer has metastasized to my brain (which I'd thought was filled with straw – but apparently not!). There is a tumor (they call them lesions) at the base of my cerebellum (where I felt the weird pressure) – it's about 2 centimeters in size. A bad location for it, by the way, since it's just about in the area where all the body function “bundles” run up the spine through the neck. Typical me though – if it's going to be weird, it'll happen to me!!

On the other hand, Regions Hospital was incredibly on top of it. A brain surgeon came in to see me – Dr McIver (honest to God that's his name, I thought I was being punked !!) Nice man. He said that surgery would not be his recommendation – laser treatment was. The Tuesday after Thanksgiving, I began brain radiation (“whole brain radiation treatment” - 10 treatments). Tomorrow will be the 10th and last. Wednesday, I will be having a laser treatment (“Stereo-tactic brain treatment”).

I have to say, I'm really pretty fascinated with all the prep, machines, etc, etc. If I have to go through it, I might as well learn something, right? Knowledge takes away the fear for me. I want to get this posted so that you'll know what's happening. It has taken me four days to write this. I will write more. I don't care how bad it gets, there is a lot of fight left in this bear!! With much love – me!

PS: if you want to send me an email, please.....type it out, print it and then mail it to me. The computer it incredibly overwhelming to me right now. (5315 - 28th Avenue So, Minneapolis, MN 55417)